Additionally, we had to wean her off the baclofen because it is not available in oral form here as in the States, and this has made her very stiff again. The slight gains we thought were resulting from the Hyperbaric Oxygen Therapy were actually, we see now, the results of the baclofen she was taking.
We have an appointment scheduled with a new neurologist on Oct. 11th. Perhaps she will have something new to suggest. Meanwhile, we pray, we wait on the Lord, and we do the best we can with what the Lord gives us.
September 23rd-27th, we went a couple hours away on a Team Retreat where (in spite of little sleep) we had a great time with our team, planning, praying, worshipping, playing, eating, etc. together. Here are a few pics of Ellie from that weekend (by-the-way, while a couple of the pics look like she is not enjoying the time of "catch" with daddy, she really did!)...
2 comments:
re: baclofen and it's positive affects.... We'll be praying that there will be an alternative! Also praying for Ellie's quick recovery from the crud that's current. Thanks for the update, Scott!
I wish Ellie was seeing more improvment from these treatments. I feel confident that great medical strides are being made and that some will help her. But, mostly what I think about when I read your blog is how wonderful it is that Ellie's family understands what a beautiful, joyous light she is, as she is.
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