This is what happens in the day when you REFUSE to sleep through the night!
We are grateful that the Lord recently provided for us to get a new seat for Ellie. She had outgrown her previous one, and it had been a while since she was able to sit in something that especially helped with her posture and special seating needs.
A few weeks ago, Ellie had another seizure (lasting about 20 minutes). It had only been 3 months since her last one. Previously, they had normally been spaced out about 5-7 months between each one, so we decided with her doctors to start her on daily anti-seizure medication. So far, so good. She has even slept through the night for about ONE WHOLE WEEK!!!! (Not sure if it is related or not to the medication). We are thrilled, but not getting our hopes up too high for regular good sleeping habits.
Ellie attended the graduation ceremony of her brother Cody on Saturday night and seemed especially proud of his completion of the one-year Greek program at the Greek Bible College.
In the last several weeks, we have seen the following improvements in Ellie: she seems to be reaching out more with her arms and hands for hugs, she kissed me several times at the beach during a baptism a few weeks ago (until now she would only kiss Vicki), she works hard to turn the light switch on and off, she is quicker on some days at choosing the video she wants to watch (by touching/grabbing/swatting it), and her physical therapist believes the Theratog she has been wearing is helping with stabilization, centering, and movement issues.
We have turned in what we believe is the very last of the papers from the U.S. government that can be produced to prove that we legally adopted Ellie and she legally belongs to us. Unfortunately, they are not what the Greek government is asking for (because the Greek government requires something different than the U.S. government does in such situations). So we are waiting to see what the Lord will do. Ultimately, He is the one in control.
If her papers are approved, and she finally (after 4 years) will receive a resident permit, we plan to send her to kindergarten in September at a Greek public school for special needs kids (which meets in the facilities of ELEPAP, a Greek non-profit that helps special needs kids). ELEPAP will probably provide Ellie's therapy needs as well while she goes to school there.
More info about ELEPAP at: http://www.eurocharity.gr/en/
If her papers are not approved...? Only God knows.
1 comment:
That looks like a fantastic school! I hope everything works out for the little superhero.
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