DISNEYLAND!

Due to some thoughtful and generous people, we were able to combine a trip to a special supporting church in California with a trip to Disneyland for our family.  Although we were not able to get very good photos, we WERE ABLE TO CREATE GREAT MEMORIES!   Ellie especially LOVED the wild and fast rides like Space Mountain, Radiator Springs Raceway, The Matterhorn, Splash Mountain, and others.  WILLIAM LOVED "It's A Small World"!  (just kidding).

                                            Relaxing in Greg and Lori Anderson's pool/spa

Brochure

Someone made a great suggestion about us making a brochure (from Ellie's point of view) for the purpose of introducing herself to people who may not be familiar with her or her needs (like Sunday School teachers, new therapists, etc.).  This is the result:

June and July 2014

Ellie visiting her brother Cody at the camp (Twin Rocks) where is working this summer

Practicing in her head-controlled chair donated by Shriners Hospital

We had a great time at our neighbors' Independence Day cookout!  Their friendly and beautiful dog Khalua kept bringing the ball to Ellie for Ellie to throw.  She loved it!

Updates since January!!!

I have had trouble accessing Ellie's blog since January so here are a smattering of photos and videos taken since then, including her new wheelchair from Shriner's hospital (thanks to a thoughtful and generous family who lost a little girl Ellie's age)...

Ellie's first time in new motorized wheelchair

 

                                             Ellie and Daddy at UCP Family Swim

                                              High school girls helping at UCP family swim

                                             High school girls helping at UCP family swim

                                                                    Uncle Phil Douce

                                                  Team photo, taken at Seaside, Oregon

                                                 Ellie loves her Mommy and...

                                                        ...she loves swimming pools too!

Wheelchair...Janaury 27, 2014...

Walk-About...January 27, 2014

 

 

 

 

  

BIG day--NO pics!!!!

Ellie's teacher usually sends a note home on most days to give a short summary of what and how Ellie did during the day.  Today's note said:  "...she got in the gait trainer today with the physical therapist.  She walked!  For about 25 minutes!..."

WE HAVE NEVER SEEN HER DO THIS BEFORE!  THE PT IN GREECE WAS TELLING US NOT TO EVEN BOTHER WITH THE GAIT TRAINER BECAUSE SHE WASN'T NEAR READY FOR IT.  

We are bummed we were not there to see it or take video BUT SO HAPPY ABOUT THIS PROGRESS and further affirmation about our move back to the States!!!

Thanks, everyone for your continued prayers!

Ellie's Movements

This post is primarily for doctors and therapists who want to get a sense of Ellie's common movement patterns.