Sunday, July 12, 2009

Miscellaneous from Last 3 months















Kendra's Wedding





















Kendra's Wedding

















Happy with Gram and Grandad!
















Happy with Grandma and Grandpa!















Grandparents Together!




















I'm THREE! (April 10, 2009)

















Fun with with family!
















Birthdays can make me tired!





















It looks like she's happy to "flip us a bird"

















"Susie Sunshine"


















Ellie the Snake Killer

Saturday, June 20, 2009

Wedding Day--June 13, 2009

Uncle Mark loves Ellie!













Our oldest daughter Kendra was married on June 13, 2009. Our youngest daughter Ellie was the flower girl. Although Ellie had a mostly good day, she wasn't terribly cooperative for the photos. We are still waiting for the professional pics, but here a few amateur shots until we get some better ones.

















Mommy gives the flower girl a pep talk

















Aunt Dana and Gram love Ellie too!






Flower Girl(s)









Saturday, February 21, 2009

Ellie Update Feb. 2009


Sorry for the delayed update!
* The results of Ellie's blood tests in Nov. (which we learned in late January)showed no problems to worry about
* Her head size seems to be within the range of "normal" on the Asian charts
* We are currently taking her to a Christian reflexologist who has helped several of our friends, and is teaching us how to do the therapy ourselves at home

* Between physical therapy, occupational therapy, and reflexology therapy we are currently taking her to 6 therapy sessions a week (outside the home)

* Everyone comments these days on how much she is growing

* Her sleep habits are goofy again. Some of these pictures show her falling asleep while eating or watching videos.
* We also continue to do therapy in the home, scheduled and spontaneous. The last photo here shows her in part of her exerise routine on the gym ball, resting her head on the dog who loves to be nearby at exercise time. I hope in the near future to post photos/video of parts of her exercise routine.













Monday, December 22, 2008

Christmas Sunshine!











I know that 3 of these photos are almost the same, but I just could not choose the best one so I added them all!

Monday, December 1, 2008

Movement and Light






















Last month our dear friend Cyndi Karnoscak visited us and took some pics of Ellie. In some ways they captured the "essence of Ellie"--especially in the areas of her constant movement and the light she radiates with her smile.

Sunday, November 9, 2008

November 2008





Took Ellie to the hospital for some tests on Wednesday to see if it can be determined why her head is not growing as it should be. We are still waiting for the results, but thought I would post a few new pics until then.

Monday, October 27, 2008

Portaits




When each of our our children reached the age of 2 or 3, Scott's dad (Bill McCracken) did a charcoal portrait of each of them. Last month, we were all pleased that Ellie joined the ranks!

Thursday, October 23, 2008

Progress Update October 2008























Cuddling and Kissing with Mommy



LAZY LUNCH (she fell asleep while eating)






ELECTRIFYING EXERCISES





In the last week, Ellie has been to the neurologist, the ophthamologist, the pediatrician, twice to the physical therapist and twice to the occupational therapist. In addition to the twice daily therapy sessions at home, time in her "standing frame", and the spontaneous activity between holding her and playing with her, she has had a full week.

The good news is that although her improvement has been very limited and very incremental, it does represent progression (not stagnation or digression). 

Here are a few examples...

1. The neurologist was very pleased with her improvement in head control, muscle tone, and interaction with the doctor (she didn't freak out and cry like the previous visits).

2. The eye doctor had said back in February that she would need glasses and we should come back in the fall when Ellie would hopefully have better head control. However, she informed us this time that Ellie's stigmatisms had improved quite a bit and we can defer the idea of glasses for at least another year.

Ellie also did really well at the eye doctor (not freaking out and crying like the last visit). She didn't even cry after they put in the eye drops to dilate her pupils.

3. The physical therapists say we still have a long road to travel but they are pleased with the small (but important and foundational) improvements they are noticing.

4. The pediatrician says she is developing mostly well but she is a little concerned about her head not growing much. She will consult more with the neurologist about that. Unfortunately, Ellie still gets upset when we go there (likely due to the shots she gets each time). :) But we have a GREAT pediatrician (Dr. Arlene Chung--a Korean American, married to a Greek) with whom we are well pleased!

Thank you so much for your continued interest and prayers on her behalf!

Sunday, September 7, 2008

"BEAUTY"



Smiling Beauty in the hotel room with William where we had our family vacation.














Sleeping Beauty (she was taken from her bed to get ready to go to physical therapy...she never woke up on her own even after getting her hair washed and her diaper/clothes changed, and it took me and the therapist 10 minutes of trying hard to wake her before she finally awoke).
















Bathing Beauty at our vacation hotel

Saturday, August 16, 2008

Tuesday, August 12, 2008

FAQ's















Reading time for the "kids"

















Exercise by the "sleep-learning" method





Q: Has Ellie been specifically diagnosed?
A: As mentioned earlier in this blog, she was officially diagnosed by her neurologist last November with Cerebral Palsy.

Q: What is the doctor's prognosis for Ellie?
A: There remains no definitive prognosis other than the strong recommendation that we continue to pursue physical therapy, with the hope that improvement will result

Q: How is it going with physical therapy?
A: Though Ellie cried hard the first few months, she is much more used to her sessions now. Her occupational therapist (play therapy for fine motor skills) is Miss Eftihia and Ellie has two sessions a week with her. She has two physical therapists (Mr. Dimitris and Mr. Nikos) and she sees each of them once per week. They are all positive about her very slow progress, but it is progress. They are hopeful for the future without making any specific promises or guarantees.

I would also like to mention that we are very pleased with the therapists. They are very skilled, patient, caring, and knowledgeable.

Q: How old is Ellie?
A: 28 months as of August 10th (her birth date is April 10, 2006)

Q: What can Ellie do by herself?
A: She can lie on the floor (or in her bed), she can smile in a way that lights up the house, she can laugh in a way that can lift the deepest depression, she can radiate cuteness like crazy, she can sleep, and she make dirty diapers. She can also eat just about anything these days if given to her in small pieces. She has improving (though not complete) head control. She can open her hands more often than she used to, and hold on to some things. She will usually lower her head when you tell her to (usually, this is necessary when holding a cup of water for her). RARELY, she has turned over by herself.

Q: What can Ellie do with assistance?
A: She can drink water from a cup if you hold it patiently and carefully for her. With a lot of coaching from others and quite a bit of effort on her part she can knock over a pile of blocks set in front of her. Sometimes when coached she will turn the page of a "board book". She will show you her tongue when you ask her to. She can sit in a special chair if she is strapped in well.

Q: Has she spoken in words yet?
A: Nothing intelligible, though she is becoming more "verbal" with baby talk and cooing.

Q: How has she bonded with the family?
A: Excellently! She also does OK with others if she has had time to get to know them. She still does not do well at all with strangers or people she has not spent that much time with.

Summer Pics

Sisters




Aunt Donna and Aunt Maria



















Ellie and 8-month-old Athens RefMin Teamie Sofia Sanner

Summer Videos 2008



First Time At The Beach!




Standing Queen!




Bubbly About Bubbles!




More Bubbles...




...and even more bubbles







Fun with Mommy!